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Dîstrofiyên masûlkan - Malperên balkêş û nerîna bijîjkê me
Ji bo bêtir hîn bibin dîstrofiyên masûlkeyans, Passeportsanté.net offers a selection of associations and government sites. You will be able to find there Additional Information û bi civakan re têkilî daynin an komên piştgiriyê dihêle hûn di derbarê nexweşiyê de bêtir fêr bibin.
landmarks
Fransa
French Association against Myopathies (AFM)
Association created in 1958 by patients and relatives of patients, with the aim of curing neuromuscular diseases and reducing the handicap of those affected.
www.afm-telethon.fr
ORPHANET
The rare disease portal
www.orphanet.Fr/
Kanada
Muscular Dystrophy Canada
Association whose goal is to advance research on neuromuscular diseases and to support patients and their families.
www.muscle.ca
Dewletên Yekbûyî
Komeleya Dîstrofiya Masûlkan
www.mdausa.org
Dîtina doktor
Wekî beşek ji nêzîkatiya kalîteya wê, Passeportsanté.net we vedixwîne ku hûn nêrîna pisporê tenduristiyê kifş bikin. Dr Jacques Allard, bijîjkê giştî, nerîna xwe li ser we dide distrofiya masûlkeyan :
My advice is primarily intended for parents who are concerned about the development of their child. If your child has difficulty walking, running, getting off the ground or climbing stairs, seems awkward or falls frequently, it is best to see a doctor, as these conditions could be the first signs of muscular dystrophy. . Once diagnosed, medication and rehabilitation can help relieve symptoms and slow disease progression. Finally, I also recommend consulting a doctor who is expert in genetics. Dr Jacques Allard MD FCMFC |